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Families with children with disabilities need answers about funding for home care: NDP MPPs
By Media Release
Ontario NDP

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Families with children with disabilities need answers about funding for home care: NDP MPPs
Peter Tabuns, NDP MPP for Toronto-Danforth, and Monique Taylor, Ontario NDP critic for Children Services, said it’s simply cruel for the Ford Conservatives to stop flowing funding for Special Services at Home (SSAH) and leave the families who depend on the program in limbo, unsure if things will get better in the new budget year. Tabuns and Taylor were joined for a press conference Thursday by families from their communities who spoke in stark terms about the devastating impact of the end of the funding, and their fears of what’s to come.
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Toronto - April 6, 2019 - Peter Tabuns, NDP MPP for Toronto-Danforth, and Monique Taylor, Ontario NDP critic for Children Services, said it’s simply cruel for the Ford Conservatives to stop flowing funding for Special Services at Home (SSAH) and leave the families who depend on the program in limbo, unsure if things will get better in the new budget year. Tabuns and Taylor were joined for a press conference Thursday by families from their communities who spoke in stark terms about the devastating impact of the end of the funding, and their fears of what’s to come.

Marcia Costa’s five-and-a-half-year-old daughter, Noemi, requires 24/7 support. Noemi was born with a genetic disorder later diagnosed as Isodicentric chromosome 15, is legally blind and has a seizure disorder that causes 15 to 20 seizures per day.

Costa said she was alarmed to find out that the support Noemi receives through SSAH and Enhanced Respite services had been frozen. The program provided for a respite care person one night per week, relieving the Costas as they work during the day to be able to afford the support their daughter needs and get up through the night the other six days of the week to keep her safe when she has seizures.

“Parents of children with disabilities who count on the home care provided through SSAH should not have to fear that this vital support will be ripped away permanently,” said Tabuns. “It’s cruel to suddenly stop services and make families face an agonizing wait for what could be more bad news.”

Susan Bassett’s 14-year-old daughter, Treva, was born with DiGeorge Syndrome and has a number of physical disabilities and mental health conditions. Bassett said respite funding has been critical for her family, and she’s worried about how they will manage without it - especially now that her husband, Randy, has been diagnosed with cancer. The Bassett family has had their respite care taken away.

“This government is honestly cutting back the most vulnerable people in society and it needs to stop,” said Bassett. “We are in week one of no respite and I can tell you it has put undue pressure on our family.”

Taylor said the Ford Conservatives should not make families with children with disabilities who depend on SSAH wait any longer for the answers they deserve.

“These parents do everything in their power to support their children with disabilities, and they deserve better than to have their government throw their lives into disarray,” said Taylor. “We need to provide more support to vulnerable kids and their families, not less.”

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